Monday, November 29, 2010
Monday, November 22, 2010
I am still so confused on everything that goes into this, especially since he goes to a Parochial school and so we have the right to services from the public school. Lets just say a lot of phone calls, emails and door knocking has been going on. I am google obesessed these days with trying to understand all the terms. We love our son so much and want the absolute best for him. We are his voice and we hope to lay the path for other families in our situation.
We have learned from fellow parents that we have to speak up and out. Don't be afraid to take that first step and get the help that your child needs in school. In our case Aspergers Syndrome is nothing to be ashamed of, or for others any learning disability is nothing to be ashamed of. Our children will succeed, it might take a little longer and we might go down a different path but yes they will succeed.
Remember that God gives us amazing gifts in the form of children they just might come in different wrappers. None the less they are all amazing and true gifts.
Monday, November 15, 2010
So I have been busy with school activities, birthdays, cleaning closets, etc. and it occurred to me that Thanksgiving is next week! Wowzers, is that possible? I figured I needed to get on the ball since I am hosting for the Miller sanction.
The Deacon and Pops are flying in next Wednesday morning, I would appreciate all positive thoughts and prayers for their safe travels from Valdosta. Once they get to Green Acres they are going to pick up Cameron and then they are off to Newton to pick up Gigi. (This is her 89Th Thanksgiving as she turns 90 on December 14Th) We couldn't have Thanksgiving without her. I just hope we have decent weather so we can get down there and back with her.
I have always loved Thanksgiving, of course the food but most of all the time spent with those you love. This is going to be so much fun, I am calling it my "Walton's Thanksgiving", and I am showing my age here. Those of you that are young google The Walton's it was an amazing, good moraled TV show of my youth. We are going to go to Church on Wednesday night after we have pizza, yes Pizza! I spoke with Papa Murphy's and told them of our situation with Cameron and dairy, they said just bring my cheese in and they will put fresh gloves and clean the area and top the pizza with our cheese. He said they have a lot of customers they do this for. The sweet bag guy at Whole Foods this weekend told me to try Daiya Shreds for pizza as they melt the best. Any of you tried these?
As for Thursday I have been working on our Menu. I have loved the Williams Sonoma Thanksgiving books forever and I have planned our feast. I have even researched alternative dairy free ingredients and ideas.
Buttermilk Brined Turkey with Bourbon Gravy
Cornbread Apricot Dressing with Rosemary
Apple-Orange Cranberry Sauce
Whipped Sweet Potatoes ~ for Pops and Mr. Miller
"Smashed White" potatoes for my little Cam Man
Snap Beans with fresh garlic and Bacon
Stone Hill Chambourcin
I read that if I use plain coconut milk it will act like buttermilk in the brining process. We did a trial run this weekend on the "smashed white" potatoes with plain soy yogurt and chicken broth and all I can say was "YUM"! I even read up on a dairy free pumpkin custard that I can use in my crumble. Maybe this dairy free won't be so bad. Not to mention I read a testimony by a Mom and Dad who said they both lost about 60 lbs. Hello....
Friday morning the Deacon and I are off to shop and Clark Sr, Clark Jr. and the crew will be doing some exterior illuminations here at Green Acres. We will decorate later that day and just spend time together.
Thanksgiving is about togetherness, love, laughter and good food. I am thankful this year for our bountiful blessings. God never lets us down and he continues to amaze me everyday. Thank you all for being part of our blessings.
Friday, November 12, 2010
Wednesday, November 10, 2010
Well I entered a new decade today. I am 40 and I have to say I wasn’t real excited about this mile marker. The more I have thought about it and the more I have talked to my fellow members in this elite club maybe it won’t be so bad.
Mr. Miller, with the help of The Deacon, Pops, Mimi, Poppa, Aunt Erika and Uncle Randy, took me out of town this past weekend. We went to one of our favorite places, Hermann. It is a wonderful little town of 2500 nestled in the valley of the Missouri River. It has German Roots and lots of
good GREAT wine and food. Here are a few moments from our weekend.
When I awoke this morning Cameron and Mr. Miller had set the coffee pot and I found this card made by my little man.
With this card and all of the calls, texts, hugs from the sippy cup gang and FB messages 40 is not looking so bad. As Jimmy would say “here’s to another trip around the sun!”.
Tuesday, November 9, 2010
Monday ~ Tuna and Rice Casserole, peas and corn
Tuesday ~ Pork chops, Mashed Sweet Potatoes, Green Beans
Wednesday ~ Taco Soup
Thursday ~ Leftovers
Friday ~ Meatballs, Mashed Yukon Golds, Peas
Saturday ~ Mac n Cheese, Hot Dogs and Apple Sauce (Mama and Mr. Miller are going to the STM Auction that night)
Sunday ~ Soup and Sandwich
Monday, November 8, 2010
The last 2 weeks have been quite a ride on an emotional roller coaster. We have been blessed with 2 amazing sons. Cameron is 7 and Henry is 21 months.
We always knew that Cameron was special, heck aren’t all children, but Cameron had his little quirks. He made these little sounds like chattering as long as we can remember, structure and routine were always inevitable, sleeping through the night became a thing of the past at 15 months, loud noises were horrifying and list goes on. When Cameron was 4 his pre school teacher had suggested that maybe Cameron had issues with ADHD and/or the Autism Spectrum. I put it in that file we all have labeled “not my kid” and went on about our lives. It would still come the mind here and there over the next 2 weeks when I had a friend who worked for me sit down and ask me some questions about my little guy. I was forced to open that file because she was right. Cameron did have some of the characteristics and you know we might get some answers.
We made an appointment and thus our first ticket was purchased you could say on the Autism Spectrum Disorder Ride of life.
Cameron tested right on the edge for Aspergers, ADHD was a definite and OCD was a great possibility. We started on a all natural approach with fish oil and behavior modification and we rode that part of the ride for about 6 months. We did see some changes but not enough to give Cameron the quality of life he deserved.
Back to the Doctor for the follow up appointment we went. Dr. Hoffman had still decided not to formally diagnose at this time because of Cameron’s age. Unfortunately Mr. Miller could not be there with us and I had to swallow the pill of agreeing to medications for our son. This was much harder than I thought it would be too accept. I felt that I had failed as a mother, what could I have done differently? Answer: NOTHING! I needed to do this for Cameron and he needed it. We saw great changes.
Over the next year Cameron started kindergarten and did great. He was writing his name and writing sentences. Doing just great and adapting to life in school.
This year we started 1st grade and have hit a few speed bumps. Reading is not going well at all and he is behind the other students academically.
After a disappointing first conference Mama got upset. Mr. Miller referred to it as they “poked the witch”. I kept my cool but after being up all night 2 weeks ago Thursday and burning up the Google button a few calls and emails were made that Friday morning. We had some positive results and new that Monday was going to be a long day with meetings and Doctors appointments. We met with the Resource Teacher and Principal, spoke with the Public School District about an IEP and then went to the Doctor. We discovered that the missing link was a formal diagnosis. I didn’t think that would be so difficult, after all we all knew it was there but maybe just maybe if it wasn’t written down it wasn’t true.
Well its true and it is a fact of life, ticket 2 purchased for the ride. Cameron has officially been diagnosed with Aspergers, OCD and ADHD. Reality is that just because it is in his file now it won’t keep him from really succeeding in life. I still found myself on this roller coaster of emotions. Truth is I still find myself reliving the last 7 years and my pregnancy with him. What could I have done differently, then I snap out of it and say get a grip and move forward. I just wish I could on a regular basis.
We have changed a few medications and are getting ready to become dairy/casein free for the next 2 months. I know we tried the dairy free route before but I found it intimidating and we failed miserably. We are researching and have found that we should gradually wade into these waters and it will be an easier process.
I am asking for suggestions to help us on this dietary change. I have a little guy that loves his yogurt, cheese and ice cream. He does enjoy coconut ice cream so I think I might have that one worked out.
Like I said in the beginning it has been a wild ride we are on. I wouldn’t change it though. I have an amazing, smart, bright, silly, genuine and loving little boy who loves life and all it has in store for him. Who could ask for anything more?